What is Down Syndrome Regression Disorder? In 2022 a global research paper was produced in which 25 medical professionals from around the world, together agreed on the Nomanclature (Name), Assessment […]

Down Syndrome Regression Disorder (DSRD) is an emerging condition where individuals rapidly lose language, communication abilities, and developmental skills over a period of weeks to months without a clear cause. […]

Down syndrome regression disorder (DSRD), also referred to as regression, is a rare but serious disorder that occurs in some adolescents and young adults with Down syndrome. Regression is used […]

Down Syndrome Regression disorder has been referred to by a number of names over the years since the 1940’s when first identified. In 2022 the was global agreement on the […]

The three interviews are NOT screening tools. They each cover all the necessary symptoms, not a subset of them. There are, however, some differences between the Moss-PAS (Diag ID) and the other two (Moss-PAS (ID) and Moss-PAS (ChA)).

MBS items for patients with intellectual disability – May 2023 (pdf 370KB)

A person with intellectual disability is at high risk of poor health, chronic disease and unmanaged ill mental health.

By focusing on quality improvement activities in your practice you will be able to ensure your clinicians and practice staff are able supported and trained to offer patient-centred, comprehensive care to people with an intellectual disability.

How to use POLAR to identify patients with an uncoded diagnosis of intellectual disability – YouTube

A checklist for health professionals to use before, during and after a person with intellectual disability presents for a health appointment.

Every person with a disability who uses the NDIS has the right to good quality and safe services.
As part of Inclusion Australia’s Your Service, Your Rights project they have created a set of Conversation Cards for people with an intellectual disability.

First Nations Disability Network’s Flyer to support access to advocacy.

An Easy English version of the Australian Charter of Healthcare Rights (second edition) from the Australian Commission on Safety and Quality in Health Care.

Deciding with Support is for people with disability and the people who support them. It is to help people make decisions about their behaviour support plans.

The aim of this article is to identify some of the challenges involved in conducting mental health assessments of people with learning disabilities and to provide practical advice for nurses on how to overcome these issues.

Taking medicines can be complicated, especially when you’re taking multiple medicines. A medicines review in your home can help make sure your medicines are safe and working well for you.

This video assists healthcare professionals in providing care to people with intellectual disability.

A health literacy guide to support the health of people with a cognitive impairment or intellectual disability.

My COVID-19 Plan. Complete the following plan and put it in a safe and easy to find place in your home.

A guide to help you make your own plan

Self-advocacy involves speaking up for yourself and knowing your rights about the things that matter to you. Independent Mental Health Advocacy (IMHA) have developed a self-advocacy model to assist you to be able to speak up for yourself. The model was co-produced with people who have experienced compulsory mental health treatment or have used mental health services.

A conversation guide used by people with disability to tailor
emergency preparedness planning to their individual support needs.

By the Australian Commission on Safety and Quality in Health Care

By the Australian Commission on Safety and Quality in Health Care

By the Australian Commission on Safety and Quality in Health Care

A Handbook on Supporting People with Intellectual Disability who have Experienced Domestic and Family Violence (pwd.org.au)

Easy read guide to sharing your experience with the Disability Royal Commission

Easy read guide for witnesses at the Disability Royal Commission

A guide to promote conversation between people with Down syndrome and their families about relationships, sexuality, staying healthy, rights, and consent.

A Framework that outlines the core attributes required by mental health professionals when working with people with an intellectual disability and their families or supports

A guide for health professionals on accessible mental health services for people with an intellectual disability

NDIS Practice Alert prepared jointly by the Australian Commission on Safety and Quality in Health Care, and NDIS Commission. – Comprehensive Health Assessment

A toolkit for General Practice to better understand the NDIS and the GP’s role is accessing the scheme for their patinets.

A resource for people with a disability to understand their rights under the Disability Discrimination Act

The Federal Disability Discrimination Act 1992 (DDA) provides protection for everyone in Australia against discrimination based on disability.

Easy English information on sexuality and relationships for people with an intellectual disability

Easy English information on what is violence and abuse

Sexuality and Relationship resource list to support people with an intellectual or learning disability

Fact Sheets: Health fact sheets on how to break down the barriers to good care for people with an intellectual disability and address health inequities they experience.

Easy English information on how you can make a complaint about something you have bought or a service you have received.

Easy English information about the impact of a heatwave on your health and how to stay well

Easy English information about how to stop a fire from happening in your house and what to do if there is a fire.

Easy English information about having your own safety plan to help you prepare for an emergency.

Easy English information on how to look after yourself if you have had COVID-19

Easy English information on what to do if you think you have COVID-19

Easy English information on what happens when you go to the hospital for surgery and how you can be prepared.

Easy English information on exercises that can be used if you are feeling scared, stressed or worried.

Easy English information on how to stay mentally healthy and well

Easy English information about mental health and how to get help if you need it.

Easy English information about how to health care plans for chronic health problems

Easy English information about caring for your teeth

Easy English information about friendship and how to be a good friend.

me360 cards help young people with disability have conversations about the important things in their lives.

Easy English information about the different viruses and how to stay healthy and well

Easy English information about finding a new doctor

Easy English information on what is happening in your home during COVID19 to keep you safe

Easy English information about what to do after you have been to the doctor and what to do next

Easy English information on when to the doctor and how to make decisions when you go

Easy English information on the different health services for adults and the different types of doctors you can visit.

Easy English information on the importance of having a check up at your doctors and what the doctor does

Easy English information on signs that you maybe getting sick

Easy English information on how to stay well healthy and well

Easy English information on how to use your funding to help you live a good life

Easy English information on you can choose the right support worker for you

Easy English information on how to look after you health and wellbeing during lockdown

Easy English information on what is happening in your home during COVID19 to keep you safe

Easy English information on COVID19 and how to stay mentally well

Easy English information on wearing a mask during COVID19

Easy English information on who to call about COVID19

Easy English information about COVID19 and how socially distance

Easy English information about COVID19 and how to stay healthy.

Easy English booklet on everything you need to know about COVID19

This an easy read guide about the National Disability plan to make life better for people with disability

Fact Sheet: Information on wearing a mask to stay safe

Fact Sheet: Information on how to access services for people with an intellectual disability.

Fact Sheet: Information on support for carers and families

Fact Sheet: Information on nutrition and eating well

Fact Sheet: Information on the importance of staying active

Fact Sheet: Information on how to stay mentally well

Fact Sheet: Information on behaviour support to people with an intellectual disability.

This an easy read guide about the National Disability plan to make life better for people with disability

This is an easy read guide about the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability.

Fact Sheet: Information on Telehealth and how to use it.

Resources to support people with intellectual and/or developmental disabilities

Easy English booklet on how to communicate effectively with people with an intellectual disability.

This is an easy read guide about the new National Roadmap is to help improve the health of people with intellectual disability.

Supporting Women – Information and resources for general practitioners supporting women with intellectual disabilities to manage their menstruation

Booklet to help you understand more about having a Pap test.

Hanging Out Program – Interaction for people at risk of isolation booklet

Booklet to help you understand the relationship between Down syndrome and Alzheimer’s disease

Fact Sheet – Working with people with an intellectual disability in healthcare settings

Fact Sheet: Useful Services for people with developmental disabilities

Fact Sheet: Accessing mental health services for people with an intellectual disability